|Taking the stairs|
|How $100,000 would change my life|
|There’s more than one way to win|
|The importance of education|
|How wheelchair tennis improved my function|
I have Becker Muscular Dystrophy and was diagnosed at age 13. Despite this, however, I have gone on to do all of the following things. I share them not to brag but to show you that it is possible to achieve more than is imaginable:
- Play cello since age 5
- Play basketball & tennis for grade school and high school teams
- Play in the high school orchestra
- Participate in student government, clubs, and competitions throughout high school
- Graduate #1 in my high school class with a 4.0 grade point average
- Play in the college orchestra
- Participate in college dorm government
- Graduate from Stanford University
- Move by myself to Hawaii and live independently
- Attend graduate school
- Start a successful business
- Become a published author
- Play professional wheelchair tennis
- Drive a wheelchair accessible truck
- Travel the world by myself and visit places like Africa, Australia, and Europe.
- Road trip across the United States for tennis and for fun.
- …and many more things.
Most muscular dystrophy books are scientific. I decided to focus this online muscular dystrophy “book” on the things I have learned and experienced while dealing with muscular dystrophy.
Writing a book about muscular dystrophy has always been on my list of things to do. I even answered a college application essay that asked, “If you could write a book about anything, what would it be?” by saying I’d write a book about my experiences dealing with muscular dystrophy. So now, whenever I get a chance, I will be posting things I’ve written in the past or new articles I have ideas for. If you have questions or an idea for a post, please post a comment on this page or contact me and I’ll do my best to get back to you as soon as possible. My goal is to one day assemble all these posts into a real book about life with muscular dystrophy so any feedback is appreciated.
Whether you have muscular dystrophy, have a child that’s just been diagnosed with muscular dystrophy, or just know someone with muscular dystrophy I hope the information on this site is valuable and lets you know that it’s possible to live a full, productive, exciting, and happy life even despite having muscular dystrophy.
Please read my posts by browsing the categories links at the right or you can also see a list of all the posts on this site and find articles of particular interest.
You can also find out why I launched this project.
Thanks for visiting!