Author Archives: Dan

Feeling overwhelmed by muscular dystrophy

I haven’t put out many posts in the last weeks and tried to think about why. Curiously, I have been doing/hearing a lot about muscular dystrophy in the last few months so you’d think I’d have lots to write about. … Continue reading

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Stop asking fearful questions once you’ve answered them

I was brainstorming a list of some of the things that can hold a person back. The first thing that came to mind was FEAR. In fact a few of the other things that came to mind like “worrying about … Continue reading

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How your business loses money when your building is not accessible

There are a lot of options out there for restaurants, dentists, doctors, coffee houses and auto shops. If your location is not wheelchair accessible you are definitely losing money. Countless times each year I change my mind and spend my … Continue reading

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The news is full of fear and all about money. Don’t be like the news.

I can’t always escape the news. It pops up on a website somewhere or on Twitter. I’ll be at my grandma’s house and the news comes on or I will see an ad for what’s going to be on the … Continue reading

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Get me in the pool

When I get into an accessible pool, the process is simple. I pull up next to the accessible chair and slide from my wheelchair onto the seat. Then someone flips a switch and I’m quickly lowered into the water. Fun … Continue reading

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Becker Muscular Dystrophy mentoring program

I am pleased to pass along information about a new mentoring program focused on Becker muscular dystrophy. I was contacted many months ago by the program’s director, Lily, who has come up with a wonderful strategy for connecting and supporting … Continue reading

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Road tripping with muscular dystrophy: My 2012 Trip Notes

I spent the last three weeks traveling with some extended family members – particularly an aunt, uncle, and my two cousins. We spend about 48 hours in my van driving to-and-from Florida, stopping at many hotels and places along the … Continue reading

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Sometimes it just takes a small push

There are times when I feel stuck. I could be physically overwhelmed or mentally blocked. Take for example getting out of bed. When I am traveling and the hotel bed is a little too mushy, I can easily get stuck … Continue reading

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Wishlist of technologies

Yesterday I wrote about some lifesaving technologies I appreciate that we already have access to. Today I thought I’d ponder some “dream” technologies which are either coming down the pipe or could be wonderful to have around. 1. Batteries that … Continue reading

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“Lifesaving” Technologies

Someone asked me the other day what I would be doing as a career if I wasn’t involved in computers. The first thing that came to mind was something math-related, like a statistician. But can you imagine how much work … Continue reading

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