Below is a listing of all the posts on the site organized by category. If you want to browse excerpts of a particular category then click the category name to see that category’s page.
Everyday Life- Pay attention to what makes you uncomfortable
- I think I get better customer service
- Stop asking fearful questions once you've answered them
- Sometimes it just takes a small push
- Wishlist of technologies
- "Lifesaving" Technologies
- Learning from bad experiences
- The wonderful world of wheelchair ramps!
- The bed problem
- What are you learning?
- Losing weight is such sweet sorrow
- Thinking about the percentages
- Sitting all day
- How accessible is accessible enough?
- There's a pill for that.
- The Forceful Fraulein
- Blind confusion
- Planning for future health
- Gradual change and adjusting
- Powering up
- Leveraging momentum with muscular dystrophy
- 5 Things to train people around you to do
- Be your own advocate, productively
- 5 ways to exercise your brain
- Making things easier is easier than you think
- The battery experiment
- Busy is good
- Muscular dystrophy perspectives: Brad
- Service Dog Series Part 3: A boy and his dog
- Everyone needs tools, not just disabled people
- Reduce stress about your mobility issues
- Service Dog Series Part 2: How service dogs help and where to get one
- Disabled people live everywhere
- I can't believe I'm ...
- 5 positives about transition in progressive muscle disorders
- Overbearing is a mixed blessing
- Don't be like a weather forecast
- The two types of disabled people
- Muscular dystrophy and bathrooms
- Starting a business with a disability
- Inspiration and my disability
- Why I'm happy about a new toilet
- Learned helplessness
- Taking the stairs
- Muscular dystrophy is not embarrassing
- How warmth makes me feel
- Cold weather makes me heavy
- What laughing at myself means to me
- Are we our bodies?
- Do you daydream or do you worry?
- Use music to incrementally improve your mood
- The difference between living and existing
- Excuse me, are you okay to drive?
- The evolution of my mobility
- Safety and vigilance
- You can have meetings in your underwear
- How $100,000 would change my life
- Tax Time
- Control what you can
- Think of it as exercise
- The good and bad of assumptions
- Laugh when someone forgets
- Make getting out of bed easier
- Bleacher stress
- Making seating transfers easier
- Why I don't use footrests on my wheelchair
- My favorite shoes are actually slippers
- My Top 10 Worst Things About Having Muscular Dystrophy
- Making (almost) everywhere you go accessible
- A trick for getting up from a chair with help
- Staying warm with muscular dystrophy
- Say no to underwear
- Pants and Intimidation
- No, I don't have MS and I'm not from Minnesota
- Motivating to shower
- My dead arm
- There’s more than one way to win
- Use a camera bag to hold your wallet, cell, & more
- When kids ask questions about my disability
- Do I think about having muscular dystrophy every day?
- When should I give up on walking?
- Strangers like to help
- Don’t rely on help, but know when to ask for it
- My first day using a power wheelchair
- Using the bus for the first time in a wheelchair
- Happiness as an attitude
- Challenges are an opportunity for creative thinking
- Do you want fries with that?
- Not caught with my pants down
- A nice tossed salad
- When it's important to be there
- Laugh when someone forgets
- My dead arm
- The friend that pushed me around Australia
- The friend that built my platforms
- Parental balance
- Back to swimming
- Why I don't need a (total) cure
- I don't care what you can't do anymore. What CAN you do?
- A great tabletop hand cycle
- Motivating to shower
- Water is important
- How wheelchair tennis improved my function
- Finding my muscular dystrophy through a muscle biopsy
- How I follow muscular dystrophy research
- Bilateral heel cord lengthening surgery
- These should be in every airport
- 5 Gift ideas for people with muscular dystrophy
- My helpful transfer board
- How I get my socks and shoes on
- Heated clothing
- Abilities Expo 2011 Review
- Get your wheelchair on a boat
- Wheelchair accessible toy hauler / RV
- My favorite shoes are actually slippers
- A great tabletop hand cycle
- Making (almost) everywhere you go accessible
- Staying warm with muscular dystrophy
- My wheelchair batteries
- Use a camera bag to hold your wallet, cell, & more
- The Kindle makes reading easier
- How to find a cheap wheelchair
- Weight belt as a leg strap
- Reacher
- Becker Muscular Dystrophy mentoring program
- What to do with a new diagnosis of muscular dystrophy
- Check out "My Beckers Story"
- Becker Muscular Dystrophy Conference 2012
- Abilities Expo may be coming to a town near you!
- Cool Stuff Roundup: Drawing, Report Disabled Parking Violations, and Accessible Tickets
- The wonderful world of wheelchair ramps!
- What are you learning?
- How I get my socks and shoes on
- Optimizing your space
- Heated clothing
- Be your own advocate, productively
- Neat culinary idea for disabled
- Challenges are an opportunity for creative thinking
- Finding the right support group
- If you think you're not good at something...
- Service Dog Series Part 3: A boy and his dog
- Service Dog Series Part 2: How service dogs help and where to get one
- Good vs. Bad Complaining
- 7 Tips to make cooking easier if you're disabled
- Get your wheelchair on a boat
- 5 assumptions you should not make if you are disabled
- Muscular dystrophy and bathrooms
- Becker Muscular Dystrophy Conference
- Use music to incrementally improve your mood
- Safety and vigilance
- Control what you can
- The power of accepting a shorter lifespan
- Make getting out of bed easier
- Use anxiety as a motivator
- Making seating transfers easier
- Making (almost) everywhere you go accessible
- A trick for getting up from a chair with help
- Staying warm with muscular dystrophy
- Say no to underwear
- Motivating to shower
- Grumpy disabled people
- There’s more than one way to win
- Use a camera bag to hold your wallet, cell, & more
- When kids ask questions about my disability
- Water is important
- How wheelchair tennis improved my function
- Do I think about having muscular dystrophy every day?
- How to find a cheap wheelchair
- Weight belt as a leg strap
- Reacher
- Disability Travel Tip: Hotel Arrangements
- Disability Travel Tip: Airport to Hotel
- Disability Travel Tip: Flight Planning
- What is disability discrimination if not this...
- The news is full of fear and all about money. Don't be like the news.
- Get me in the pool
- The pool rules
- Food accessibility nightmares
- My thoughts on big jury payouts
- I won't forget.
- Good vs. Bad Complaining
- Overbearing is a mixed blessing
- Pay attention to the science behind treatment claims
- The two types of disabled people
- Sometimes I'm just messy
- What laughing at myself means to me
- NYC "Taxi of Tomorrow" does nothing for accessibility
- Why I don't need a (total) cure
- On suffering
- Bumpy Sidewalks
- So your head is a bit lower, who cares?
- I don't care what you can't do anymore. What CAN you do?
- The 8 problems with designated accessible seating
- Grumpy disabled people
- Wheelchair accessible taxis
- SSDI and Becker Muscular Dystrophy
- Accessible bathroom stalls are not the luxury stalls
- Wheelchair only parking spaces
- The Kindle makes reading easier
- The Brain that Changes Itself
- The Mind and the Brain
- No Excuses: The Kyle Maynard Story
- College and muscular dystrophy: The Benefits
- College and muscular dystrophy: Resources
- College and muscular dystrophy: The Challenges
- College and muscular dystrophy: Getting started
- College and Muscular Dystrophy: Picking a College
- Muscular dystrophy and gym class
- The importance of education
- My pro wheelchair tennis "career"
- When you can't do, teach.
- Playing tennis despite muscular dystrophy
- A great tabletop hand cycle
- Pants and Intimidation
- Basketball and my muscular dystrophy
- There’s more than one way to win
- Muscular dystrophy and gym class
- How wheelchair tennis improved my function
- Playing the cello with muscular dystrophy
- Road tripping with muscular dystrophy: My 2012 Trip Notes
- Wheelchair travel: The Hilton Hawaiian Village Resort in Waikiki
- Wheelchair travel: The Wyndham Royal Gardens Hotel in Waikiki
- Wheelchair travel: The Aqua Lotus hotel in Waikiki
- What happens when you fly with a wheelchair?
- The 10 things I want in an accessible hotel room
- These should be in every airport
- My accessible travels: Christchurch, NZ
- My accessible travels: Dunedin, NZ
- My accessible travels: Lanai, Hawaii
- My accessible travels: The "sounds" of NZ
- Reduce stress about your mobility issues
- Disabled people live everywhere
- When my legs get checked as baggage
- Viva Las Vegas: My stay at the Excalibur
- Flying American Airlines with a wheelchair
- Wheelchair Accessible Waikiki
- The friend that pushed me around Australia
- Wheelchair Advantage: Airline Upgrades
- Flying to Italy in my wheelchair
- Disability Travel Tip: Hotel Arrangements
- Disability Travel Tip: Airport to Hotel
- Disability Travel Tip: Flight Planning
- Reflecting on Travel
I,m terrified of the unknown. My two sons were diagnosed in February. 2011. They are 12 and 15. They were playing waterpolo but had huge muscle break downs that led to rabdomyalsis (broken down muscle proteins end up in urine) wand both have had their kidneys flushed at the er a few times now. They can walk now but my son has 44cm calves . I don’t know any boys who hav it — older or younger. Can you tell me when does the walking ability cease? How much should you let them do? They are two boys that want to wrestle and throw balls I know you don’t have a crystal ball but I need to know from others when they first had trouble walking or couldn’t at all. Thank you. Thank you.
be.wwalking wwill become difficult or werent able to. My doctor says its variable but I need to know.some others stories to help me with the unknown! Ple