Category Archives: Everyday Life

What are you learning?

When I was a kid, challenges annoyed me. I wanted everything to be easy. Sometimes it was, sometimes it wasn’t. Over time, however, I have discovered that when a challenge presents itself, there’s usually a lesson there. Now, even though … Continue reading

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Losing weight is such sweet sorrow

The last few years I have managed to maintain my weight, or at least my shape while staying conscious about my food intake. I know this because I still fit in the pants I bought two years ago for a … Continue reading

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Thinking about the percentages

Let’s assume you are about to spend an afternoon with your friends. You’ve got three hours scheduled for a nice game of cards. If you’ve got muscular dystrophy, how much of that time is impacted by your disorder? For me, … Continue reading

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Sitting all day

Sitting in the same seat all day would probably seem like torture to some people. Prior to having to use a wheelchair I may have thought the same thing. But since I started using a chair full time I have … Continue reading

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How accessible is accessible enough?

The public pool in my city doesn’t have a visible pool lift to accommodate wheelchair users. Apparently you have to call in advance to arrange that the lift be brought (from wherever it is) to the pool that day. I … Continue reading

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There’s a pill for that.

My decision to start grad school in Hawaii was more a function of location than actual academic ambitions. I got accepted into my program of choice and was rewarded with some tuition assistance, so it really took little thought on … Continue reading

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The Forceful Fraulein

It’s comforting to realize and remember that complete strangers are out there and willing to help me if necessary. I’ve encountered dozens of these people throughout my life. The interesting thing is that I never know when one of these … Continue reading

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Blind confusion

When traveling with a disability, unless you are specific about your needs you can’t expect to get the proper assistance. Sometimes, however, you get more than you need. At the time in my life when I was still walking, I … Continue reading

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Planning for future health

It’s easy to forget there are things you can control about your life even though you have muscular dystrophy or another disability. One of these things is overall general health. It’s always odd to go to the doctor and talk … Continue reading

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Gradual change and adjusting

A friend asked me how I dealt with muscular dystrophy and losing the ability to walk. I have written about this before a little but came up with a little more hindsight on this topic I thought I’d share. I … Continue reading

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