Category Archives: Health

Back to swimming

A few years ago I was going to aquatherapy quite a bit. I loved it — exercising in the water and then doing some swimming afterwards. After seeing some of the Paralympic swimming online a few weeks ago I decided … Continue reading

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Why I don’t need a (total) cure

A few years ago I was reading an article online about Becker muscular dystrophy that suddenly made me stop and think, “You know, a treatment that would stop, but not reverse, the progression of my disorder would be just fine … Continue reading

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I don’t care what you can’t do anymore. What CAN you do?

When I first started meeting other people with muscular dystrophy, I noticed that many of the first conversations revolved around things they couldn’t do anymore. For example, I remember one guy I met and the sentences out of his mouth … Continue reading

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A great tabletop hand cycle

One of the easiest exercises to do if you have muscular dystrophy and your legs don’t work that well is to use a tabletop hand-cycle. I use the Magnetrainer. It’s affordable, durable, and heavy so it won’t slide around on … Continue reading

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Motivating to shower

When you start to think it’s easier to endure “swamp ass” than take a shower, there’s clearly a problem. This was my problem and to be honest, I sometimes still find myself trading cleanliness for convenience. I do have a … Continue reading

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Water is important

I recently had a bout with kidney stones. After it was all said and done my doctor said they were calcium stones and that it’s likely I developed them because my bones were shedding calcium and I was not drinking … Continue reading

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How wheelchair tennis improved my function

I started playing wheelchair tennis in 2006 after seeing a photo of the amazing Nick Taylor playing in an electric wheelchair. I had no idea you could play competitive wheelchair sports in a power chair. I started playing tennis again, … Continue reading

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Finding my muscular dystrophy through a muscle biopsy

Prior to the age of genetic testing, one of the few ways to decipher if you had muscular dystrophy was to do a biopsy. I have had two muscle biopsies. The first muscle biopsy was just before my diagnosis at … Continue reading

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How I follow muscular dystrophy research

Frankly, I don’t actively follow muscular dystrophy research. I used to. But I don’t anymore. Twenty years ago there was no internet and I remember one day my mom came running out of my grandma’s house to tell me there … Continue reading

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Bilateral heel cord lengthening surgery

“Bilateral heel cord lengthening” sounds horrendous. For a few days it felt like it. But it was probably the best thing I did. Before being diagnosed with Becker muscular dystrophy I was walking on my toes. It wasn’t like I … Continue reading

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