Category Archives: Helpful Tips

Don’t think about it so much

There is a fine line between being prepared and over-thinking something. Dealing with a disability often requires advance preparation. However, preparing for the worst can often change into expecting the worst. When this happens, you miss out on a lot … Continue reading

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It’s BMD Awareness Week!

We are in the midst of Becker Muscular Dystrophy Awareness Week! Please checkout the BMD Awareness Week Facebook page and learn about the disorder or share your story! There are many people with BMD connecting on Facebook so please use … Continue reading

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Becker Muscular Dystrophy mentoring program

I am pleased to pass along information about a new mentoring program focused on Becker muscular dystrophy. I was contacted many months ago by the program’s director, Lily, who has come up with a wonderful strategy for connecting and supporting … Continue reading

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What to do with a new diagnosis of muscular dystrophy

So you’ve just gotten home from the doctor who said that you or your child have muscular dystrophy? What are you supposed to do now? Many people email me this question and I tell them pretty much the same thing … Continue reading

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Check out “My Beckers Story”

If you haven’t seen Brad’s website, My Becker’s Story, then check it out. Whenever I read his posts, I am reminded of where I used to be several years ago. It’s difficult for me to always remember or capture some … Continue reading

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Becker Muscular Dystrophy Conference 2012

The 2012 BMD Conference will be in Chicago on August 11, 2012, at the University of Chicago campus. More information will be available soon but you can RSVP to reserve a spot using the info below: Tharrie Daniels or Lisa … Continue reading

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Abilities Expo may be coming to a town near you!

I was able to attend the Abilities Expo in Chicago last year and saw a lot of neat technologies and tools. This year there are several cities and dates for the 2012-13 Abilities Expo that might be near you and … Continue reading

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Cool Stuff Roundup: Drawing, Report Disabled Parking Violations, and Accessible Tickets

I thought it might be neat to showcase some of the things I come across while surfing (wasting time) on the internet. Sometimes they’ll be related to muscular dystrophy or disabilities, but sometimes not! Here we go. 1. Drawception Remember … Continue reading

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The wonderful world of wheelchair ramps!

Ramps really are one of the most useful things for someone in a wheelchair. Since I started using mine, I’ve used all sorts of ramps. I’ve also heard the praises of ramps from people who were on crutches or pushing … Continue reading

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What are you learning?

When I was a kid, challenges annoyed me. I wanted everything to be easy. Sometimes it was, sometimes it wasn’t. Over time, however, I have discovered that when a challenge presents itself, there’s usually a lesson there. Now, even though … Continue reading

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