I am pleased to pass along information about a new mentoring program focused on Becker muscular dystrophy. I was contacted many months ago by the program’s director, Lily, who has come up with a wonderful strategy for connecting and supporting … Continue reading
So you’ve just gotten home from the doctor who said that you or your child have muscular dystrophy? What are you supposed to do now? Many people email me this question and I tell them pretty much the same thing … Continue reading
If you haven’t seen Brad’s website, My Becker’s Story, then check it out. Whenever I read his posts, I am reminded of where I used to be several years ago. It’s difficult for me to always remember or capture some … Continue reading
The 2012 BMD Conference will be in Chicago on August 11, 2012, at the University of Chicago campus. More information will be available soon but you can RSVP to reserve a spot using the info below: Tharrie Daniels or Lisa … Continue reading
I was able to attend the Abilities Expo in Chicago last year and saw a lot of neat technologies and tools. This year there are several cities and dates for the 2012-13 Abilities Expo that might be near you and … Continue reading
I thought it might be neat to showcase some of the things I come across while surfing (wasting time) on the internet. Sometimes they’ll be related to muscular dystrophy or disabilities, but sometimes not! Here we go. 1. Drawception Remember … Continue reading
Ramps really are one of the most useful things for someone in a wheelchair. Since I started using mine, I’ve used all sorts of ramps. I’ve also heard the praises of ramps from people who were on crutches or pushing … Continue reading
When I was a kid, challenges annoyed me. I wanted everything to be easy. Sometimes it was, sometimes it wasn’t. Over time, however, I have discovered that when a challenge presents itself, there’s usually a lesson there. Now, even though … Continue reading
Socks and shoes have always been a battle for me. More recently, the ability to bend my legs enough to get socks on has resulted in too much time wasted with this simple task. I have mentioned in a previous … Continue reading
Small livings spaces have a few nice benefits. They’re easier to clean, cheaper to cool/heat, and less expensive to rent or buy. Over the last few years I have adapted to living in smaller spaces and have come up with … Continue reading
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