Category Archives: Issues & Opinions

The two types of disabled people

There are two types of disabled people. 1. The disabled person who doesn’t act like they have a disability. 2. The disabled person who can’t wait to list all their disabilities to you. The first type of disabled person will … Continue reading

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Sometimes I’m just messy

Sometimes my house just gets messy — clothes hanging from drawer handles, wayward leaves on the floor, toothpaste on the faucet handles. Right now I am looking at a pile on my desk consisting of books, a plastic container I … Continue reading

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What laughing at myself means to me

Are you able to laugh at yourself? Or do you take yourself so seriously that when something disability-related happens, you get angry? Let me give you an example: I flew off my wheelchair about six months ago when the EZ-Lock … Continue reading

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NYC “Taxi of Tomorrow” does nothing for accessibility

Officials from NYC announced that the Nissan NV200 will be the city’s “Taxi of Tomorrow.” One of the competing vehicles, proposed by the Karsan company from Turkey actually had a retractable wheelchair ramp in each vehicle. Unfortunately, the city will … Continue reading

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Why I don’t need a (total) cure

A few years ago I was reading an article online about Becker muscular dystrophy that suddenly made me stop and think, “You know, a treatment that would stop, but not reverse, the progression of my disorder would be just fine … Continue reading

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On suffering

I hate when I read about someone “suffering” from this, that or the other sort of disorder. I don’t feel as though I am suffering because of having muscular dystrophy. Suffering is a state of mind. There are people all … Continue reading

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Bumpy Sidewalks

The pleasant choice is usually form over function. Why? Because it looks nice. Sometimes it’s difficult to pick the more practical and useful option because it isn’t quite as beautiful. Unfortunately this can be an ignorant and expensive decision. I’ve … Continue reading

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So your head is a bit lower, who cares?

I always pick the slow line at McDonald’s at the worst times. My stomach screaming for French fries, a small Filipino lady and a large Samoan clerk are fussing over what size coffee was just ordered. Neither of them can … Continue reading

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I don’t care what you can’t do anymore. What CAN you do?

When I first started meeting other people with muscular dystrophy, I noticed that many of the first conversations revolved around things they couldn’t do anymore. For example, I remember one guy I met and the sentences out of his mouth … Continue reading

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The 8 problems with designated accessible seating

If you have difficulty with stairs or use a wheelchair you usually need to purchase wheelchair accessible tickets for concerts, sporting events, and other places where assigned seating is required. This process is neither convenient, nor optimal. Places without assigned … Continue reading

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