I thought it would be interesting to swap questions with another person with Becker muscular dystrophy to add some additional perspective and dive into some of the thoughts those of us with muscular dystrophy have. Another Becker MD blogger, Brad Miller, offers his insights regularly on his blog, My Beckers Story. Brad also has a Facebook page and recently started Muscular Dystrophy Connect, a list of helpful MD resources. Brad has Becker’s, is still walking, and doing some great things despite having MD. Thanks to Brad for taking the time to answer these questions!
1. When you look at someone in a wheelchair, what do you see or how does it make you feel?
When I see someone in a wheelchair selfishly I think of myself, seeing some in a wheelchair to me represents something I may be in need of one day. My thoughts quickly turn to the cost associated with living life in a wheelchair, getting around in the winter, the costs involved in making a home 100% accessible, the Kitchen and the Bathroom being my biggest worry. So what I see when I look at someone in a wheelchair is change a new way of life, what I see is my future.
2. Pretend the universe split in two the moment you found out you had MD and there were now two of you living in parallel universes. The current you has muscular dystrophy and the other does not. What would the “you” that didn’t have MD be doing right now? Is there anything the real you has done/learned/experienced that your other “you” would never have?
If I didn’t have MD right now I would quite possibly be a very successful professional race car driver something I would have been able to peruse if I didn’t have Muscular Dystrophy. Maybe I would have been able to become many different things without MD but I wouldn’t be the same person I am today.
The real me has done some amazing things but even without MD I believe I would have perused the same dreams. And I really hope that I would have gone through the same experiences and learned all the same lessons the main ones being caring for others and the importance of family and friends.
3. What’s a feeling or worry you have that you think you might never “get over” and why not?
These days I tend to worry about the day when I can no longer climb stairs and what effect it will have on my ability to visit with family and friends. In recent years stairs have really become my worst enemy since they create all sorts of issues for me especially when I am invited over to someone`s home. These days many homes have finish basements and that’s where most people like to spend their time and this creates a major problem for me. I hate the fact that my issue with stairs is starting to limit my ability to socialize. This is an issue that I worry about all the time and know I will never get over this issue especially if it keeps me from spending my time with friends and family.
4. Do you have any other in-person (i.e. not online) friends with disabilities — MD or otherwise? If so, what have you learned from them?
I do have a people in my life who I know who also have disabilities. What I have learned from them is that it is good to try and enjoy your life and that a great sense of humor goes a long way.
5. Pretend you could be a member of any TV family (e.g. Cosbys, Simpsons, etc) which would you want to be a member of and why?
I would want to be a member of the Duke Family mainly Bo Duke from 80`s TV show the Dukes of Hazzard since it looks like it would have been a lot of fun driving the General Lee.