Tag Archives: adapting

Pants and Intimidation

Up until 8th grade I played basketball despite having muscular dystrophy. One of the lessons I took from that came from the pep talk our coaches would always give us before each game. If we were playing an especially tough … Continue reading

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My dead arm

My cousin Joe has labeled my right arm my “dead arm.” When he first said it several years ago, his mom, my aunt, didn’t think this was very nice. I didn’t care. He was eight years old and that’s exactly … Continue reading

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The friend that built my platforms

Getting up from chairs got really difficult at around age 25. For work I would sit on drafting chair that I would literally inch up and up to raise myself so I could stand up on my own. This got … Continue reading

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There’s more than one way to win

In grade school we used to play a game called “Steal the Bacon” in gym class. It involved splitting into two teams, assigning each kid a number, and sending the teams to opposite ends of each side of the basketball … Continue reading

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Use a camera bag to hold your wallet, cell, & more

One of the first questions I had when I started using a wheelchair was “What the hell am I supposed to do with my wallet?” I tried putting it in the front pocket of my pants, but that was uncomfortable … Continue reading

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Muscular dystrophy and gym class

I can’t count on my fingers and toes how many times I pretended to be sick to get out of gym class in elementary and junior high. Mostly it was on days when we had Presidential Fitness Testing — which … Continue reading

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The Kindle makes reading easier

I like to read books but I used to find it frustrating to be reading comfortably then having to adjust myself to be able to turn a page. I never thought having muscular dystrophy would affect my reading, but it … Continue reading

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How wheelchair tennis improved my function

I started playing wheelchair tennis in 2006 after seeing a photo of the amazing Nick Taylor playing in an electric wheelchair. I had no idea you could play competitive wheelchair sports in a power chair. I started playing tennis again, … Continue reading

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Do I think about having muscular dystrophy every day?

The short answer is, “no.” The more complicated answer is “probably.” I don’t think I consciously address the fact that I have muscular dystrophy on a regular basis, especially not every day. Even though I find myself transferring into a … Continue reading

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When should I give up on walking?

Walking is an advantage as a human because the world is set up for walkers. I walked until just past 30, when I decided that using a wheelchair would benefit me much more than what was left of my walking … Continue reading

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