Why I don’t need a (total) cure


A few years ago I was reading an article online about Becker muscular dystrophy that suddenly made me stop and think, “You know, a treatment that would stop, but not reverse, the progression of my disorder would be just fine with me!”

At the time I wasn’t sure why this hadn’t occurred to me before. Prior to that moment it was all about curing my disorder completely, anything less must have been mentally unacceptable up until that point.

But as I thought about it for a while, I realized that a treatment that would stop my progression as it is right now would leave me perfectly happy.

Why? Because at that moment in time I was perfectly happy despite my disorder. In fact I was (and still am) happier than any other time in my life, including those times when I could still walk and run and jump.

So while a total cure that would reverse my muscular dystrophy would be great, a treatment that would fix my strength as it is right now would be enough to keep me happy.

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